Care-4-Rare

  1. Cause of Port Wine Stain Found
  2. Cause of Sturge-Weber Syndrome is Discovered [2nd ed.]
  1. Cause of Port Wine Stain Found - Good news. Although the specific use of the label Port Wine Stain in this medical article continues the conversation about its less than definitive use as those of us with Klippel-Trenaunay Syndrome see it used to describe one of our many conditions (Capillary Malformations). As we know K-T Syndrome is caused by a PIK3CA GeneContinue reading "Cause of Port Wine Stain Found"
  2. Cause of Sturge-Weber Syndrome is Discovered [2nd ed.] - Mark this Day in History K-T SYNDROME FAMILY AND FRIENDS IMPORTANT ANNOUNCEMENT GREAT NEWS The cause of Sturge-Weber Syndrome, a sister diagnosis to K-T Syndrome, has been identified. Read the enclosed. There are also direct references to this discovery also explaining Port Wine Stains (all too often called birthmarks). We are extremely close to thisContinue reading "Cause of Sturge-Weber Syndrome is Discovered [2nd ed.]"

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