What would you do if these people were your patient? Your child?
. . . hypertrophy as well ???
SYNTHESIS – ANALYSIS – FEEDBACK – EDUCATION
work product is a personal perspective
It is difficult to demonstrate Lymphatic Vessel Malformations as a discrete symptom, a single symptom. These so often are present along with Capillary and/or Vein malformations. A common, but not always present visual is swelling of the affected area. Another is the purple, red-purple, sometimes red blister looking features. These are sometimes called “blebs”. Mine when they break open shed a slimy, sticky substance that is both bloody and clear at the same time. My doctors reported that this is lymphatic fluid. My lymphatic involvement is at the lesser end of the spectrum. The middle picture is less me. The far right picture more me, except that this person has a hypertrophy component – boney and/or soft tissue overgrowth. The picture on the left shows more like they have vain malformations as a complexity added to lymphatic malformations. Please keep in mind that I’m not a physician. I am relying on information I have gathered over the years talking to fellow travelers and observing medical presentations. Please ask your physicians and confirm your understandings.
Lymphatic vessels are said to be indistinguishable from veins in early gestational development. These at some point are triggered to specialize as the vacuum cleaners of our tissues returning the spent blood along with the secretions of cells and other nasty stuff to the hear for recirculation after the lymph nodes clean up things like infectious material first, I don’t have a direct reference yet, but I would bet that those with major swelling issues can point to a lymphatic vessel malformations. I also would bet that our issues with cellulitis and then sepsis trace back to these malformations. The lymphatic vessels are the least directly visible of the malformations. Its the swelling these cause that we notice the most, the blebs being the next most visible.
- DermNet NZ – New Zealand
- ENTO KEY | OTOLARYNGOLOGY & OPHTHALMOLOGY INSIGHT
- RADY’S CHILDREN HOSPITAL – USA, CA, San Diego
- MOUNT SINAI
- BOSTON CHILDREN’S HOSPITAL
- MAYO CLINIC, USA, Minnesota, Rochester
- JOHN HOPKINS HOSPITAL – USA, Maryland
- NTERNATIONAL SOCIETY FOR STUDIES OF VASCULAR ANOMALIES
- CLOVES SG
- PROS SG
- M-CM SG – Netherlands
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