- A mental approach to managing pain [2nd ed.]
- Imaging Studies are Essential
- K-T Syndrome a Shared Road Traveled
- K-T: Conditions presented at Birth
- K-T: Conditions presented during Adulthood
- K-T: Conditions presented during Childhood
- K-T: My Syndrome, My Medical Condition
- K-T: The Heredity Question
- Letter to K-T Parents
- Lymphadenitis, for those who also get lymph node infections [2nd ed.]
- A mental approach to managing pain [2nd ed.] - For my friends who live WITH CHRONIC PAIN, I’d be hard pressed to distinguish my feelings of empathy from those of love. Consider this, I love you all and hope your days get better and better. My friends, with a deep appreciation for your love and support, best in health and life. The Spoon Theory [ReadingContinue reading "A mental approach to managing pain [2nd ed.]"
- Imaging Studies are Essential - Comment Bubble … Venogram tests, or the equivalent are essential for diagnosing Klippel-Trenaunay Syndrome At one point in my medical care doctors recommended my varicose veins be stripped. This surgery would reduce the number of stasis ulcers I was having. Fortunately for me, I personally paid for a consult with doctors at Scripps’ La Jolla Medical Clinic. Yes….Continue reading "Imaging Studies are Essential"
- K-T Syndrome a Shared Road Traveled - Many of my younger K-T companions wonder what their future brings. It brings you hope. It brings you love. It brings you challenges. It brings you lovely people who gladly travel with you through remarkable journeys. It brings you friends for life. Bear with me as I explain. Dawne Lee, this remarkable lady, has stoodContinue reading "K-T Syndrome a Shared Road Traveled"
- K-T: Conditions presented at Birth - Comment Bubble Preface: K-T is so diverse that even those with visually like attributes will have deeper disparities as doctors take a closer look. Please take care in generalizing from information provided here. I guardedly present my story because so any KTS kids have told me similar stories. I get the sense that many of the kids track as IContinue reading "K-T: Conditions presented at Birth"
- K-T: Conditions presented during Adulthood - Comment Bubble Adulthood started early for me. Working fulltime at the age of 15, we unwittingly broke the child labor laws in California. Then and now, I’m glad the State wasn’t enforcing these at the time. I really needed the job and thankfully I was able to handle the late work hours and early morningContinue reading "K-T: Conditions presented during Adulthood"
- K-T: Conditions presented during Childhood - Comment Bubble Let’s pick up the conversation here with a quote from an early article. It’s telling and foundational, all in a good way. “All this said, Mom and Dad followed an Army Doctor’s advice – “He’s a child, raise him like any other child.” And they did exactly that. Who knew my “birthmark” wasContinue reading "K-T: Conditions presented during Childhood"
- K-T: My Syndrome, My Medical Condition - Comment Bubble … an introduction and overview As obvious and gross (in a medical sense) as it is, every doctor who saw me from birth through adulthood had no professional curiosity to better understand its life and medical consequences. It was my own advocacy that drove me to finally locate the small group of doctorsContinue reading "K-T: My Syndrome, My Medical Condition"
- K-T: The Heredity Question - Comment Bubble My family history with K-T: I’m the first and only known case on both sides of my family – father and mother. I have two biological children born WITHOUT K-T and otherwise very regular (9 APGAR). I have two biological grandchildren born WITHOUT K-T and otherwise regular (10 APGAR). Klippel-Trenaunay is a veryContinue reading "K-T: The Heredity Question"
- Letter to K-T Parents - … to the parents of kids with Port Wine Stains … to the parents of kids with Klippel-Trenaunay Syndrome Dear New Parents, Welcome to my personal journal. I have been diagnosed with Klippel-Trenaunay Syndrome. My journey there has been unusual. You may be feeling a bit apprehensive right now. I’m encouraging you to take aContinue reading "Letter to K-T Parents"
- Lymphadenitis, for those who also get lymph node infections [2nd ed.] - Doctor’s article – Lymphadenitis is an infection of the lymph nodes (also called lymph glands). It is a common complication of certain bacterial infections. Causes The lymph system is a network of lymph nodes, lymph ducts, lymph vessels, and organs that produce and move a fluid called lymph from tissues to the bloodstream. The lymphContinue reading "Lymphadenitis, for those who also get lymph node infections [2nd ed.]"
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